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Jani Schofield: Childhood Schizophrenia, Living With the Illness
Jani Schofield is a seven-year-old girl living with childhood Schizophrenia, and her story was chronicled on the Oprah Winfrey show today.
The Oprah show spent one week with the Schofield family and saw just how difficult it is to have a child with this mental illness and how each day is a struggle all its own.
The Oprah show executive producer spoke of her experience and said that the Schofield family was very loving and welcoming and that Jani was lovely and kind.
She has many halluncinations however of pets and friends and describes her life as somewhere between 'our world' and 'her world'.
Through experience, I also learned some of Jani's triggers…things that set her off. The first day I was there, I called her by her full name, January. This is something that apparently she doesn't like. As sweet as she was to me, that was the first time she screamed: "No! Don't call me that. I am Jani!" In an instant, she was a different child. I didn't call her January again for the rest of the week.
Jani's parents Michael and Susan Schofield decided this past summer to split their family in to two separate apartments so that they wouldn't have to be concerned with Jani hurting her younger brother Bodhi during a 'psychotic moment'.
It is far from how a typical family lives, but it seemed to work for them. One apartment was structured like the psychiatric hospital for Jani, and the other was just a normal one-bedroom apartment for Bodhi. Michael and Susan split up every night so each child would have one parent, and they rotated nightly.
Jani has to be constantly engaged by her parents or else she may have sme hallucinations and could hurt herself and those around her.
Jani has a friend called Becca who has paranoid schizophrenia and they can play together because they get each other.
But how common is Childhood Schizoprenia?
It is very rare according to Dr. Judith Rapoport, chief of the National Institute of Mental Health's child psychiatry branch, and it is only 1/300th of 1 percent of the adult rate of schizophrenia.
Schizoprenia can be genetic, but it can also be caused by infections in early pregnancy, and if children have any developmental delays such as speech and language, it can be an indicator that they will be at a higher risk for later in life.
Childhood Schizoprenia is not something that happens suddenly; it can occur over a period of months when children start to lose interest in their friends and activities and their behavior will start to seem strange. They will have imaginary friends, but ones that will seem strange and the child will say that they hear voices telling them strange things tha can be disturbing.
Q: What's the long-term prognosis for children with this mental illness?
JR: It's a chronic disease, and the prognosis depends on several things, but very few really ever reach a point that no one knows they have schizophrenia. We do have maybe a fifth of our sample who, on medication, function almost completely normally. But some degree of impairment remains, and the degree of support that they have from their school, their family, their community, makes a huge difference on what the rest of their life is going to be like.
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Most RecentMost Recommended Comments (27)
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A. Tranat 17:09 on October 6th, 2009
It's great that the parents are strong and loving to both children. Still, it must be a very challenging life for them.
at 20:45 on October 6th, 2009
I thought very deeply on this child schizophrenia thing, this girl has a younger brother and I have a feeling she may of had her nose pulled out of joint when her brother was born. Children are known to have wonderful imagination could it be because of jealousy she has invented friends and pets to attract attention to her self.
I thought mental diseases such as Schizophrenia where normally caused by a terrorfying experience or many such experiences. Where as people fold into another character when stressed or in the need to hide.
I can remember my children having imaginary friends when playing whilst young, I am some what left in doubt and not sure but has this little girl been diagnose correctly and this is just not a stage she is going through to receive attention?
at 21:02 on October 6th, 2009
Did you watch the video?
Childhood Schizophrenia is not something that is diagnosed lightly or on a whim. I'm sure her parents who have had to live in separate houses and who haven't had a normal family life for seven years would think your belittling of their pain deeply offensive.
Source: oprah.com
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KSK ADHD (not verified)at 16:50 on October 9th, 2009
As the mother of a child with ADHD I too have heard from parents who think my child's behavior is "normal" and just "active." Believe me, I would do anything to believe that my child does not have ADHD but as a mother, it is my responsibility to get him the help he needs so that he can grow into a successful adult. I could ignore it, muddle along, always justifying his behavior but in doing that I do him a disservice and he may end up someday dropping out of high school as 1/3 of all dropouts are estimated to have ADHD. I realize that Jani is not ADHD but your comments really irritate me as mental illness and other brain disorders are so often not treated as REAL diseases. This poor girl is fighting for her life AND her sanity and that is something that NO ONE would ever try to fake. Be thankful you have healthy, imaginative children and keep your inexperienced comments and judgments to yourself. I am thinking of Jani and only wish her the very best life possible.
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s.brand (not verified)at 09:10 on October 13th, 2009
though some mental disease can be triggered bt trauma, such as PTSD, recent study suggests that schizophrenia is the product of neurotransmitter malfunction in the brain. In othe words, it is a physiologic condition- an actual problem with brain chemistry. not trauma or imaginary play.
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Nyx Narcotics (not verified)at 05:25 on October 30th, 2009
Schizophrenia is quite an amazing mental illness to fake. There are certain things that one looks for in judging whether a child has Schizophrenia or whether it could just be the imagination. Childhood Schizophrenia is a rare condition, usually symptoms of Schizophrenia start later on as one becomes an adult. A 7 year old girl cannot fake schizophrenia, unless she of course was a genious and understood ever function that needs to be attacked for this illness to be present, in which case someone should hire her because not even do medical doctors understand Schizophrenia to a full. Schizophrenia is rarely sparked just by a traumatic event alone, and it usually has something to do, like with many other mental illnesses, a chemical factor in the brain. It is true that a number of kids do play with imaginary friends as a ver young child, but for a 7 year old child to be fully aware of these people as though they are there in skin and bone, as certain as she is, it is unlikely that this occurance is just a child believing she has some friends that aren't actually there. Most children who play with imaginary friends are aware of the fact that they are the only ones who can see that "friend" and these friends don't usually take form of someone who actually exists in the conscious mind. Sure you could believe without the needed knowledge that this child could just be faking it for some extra attention, but no. Shizophrenia is an extremely difficult, terrifying illness to be living with, and if a medical doctor managed to diagnose Schizophrenia wrong, well, that person should have their license to practice revoked.
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tracey dawson (not verified)at 07:55 on December 9th, 2009
your comments are rubbish - do some research before you speak of what you do not know! very demeaning to both the little girl and her parents... read more about jani and see if you don't change your mind - it's ignorant people like yourself who make things so much more difficult for someone suffering mental illness - it is an illness / a disease - not a choice. your comments really pissed me off.
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Vy (not verified)at 01:08 on December 10th, 2009
This is the most uneducated and ridiculous reply I have seen. You have the word 'babble' in your name and you sure do live up to it!
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Russell Toronto Canada (not verified)at 02:52 on October 7th, 2009
Regarding that young girl with schizophrenia, the possibility of spiritual possession should not be excluded. In treating these cases we cannot limited ourselves to a mental health diagnosis especially when medication seems tineffective. Evil is real folks and somtimes must be address in the treatment and possible cure in certain cases of assessed mental problems.
at 07:09 on October 8th, 2009
I agree, these things should never be ruled out. Demons attack the weak, children or damaged adults.
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KSK ADHD (not verified)at 16:52 on October 9th, 2009
Are you kidding??!! Who are you people???
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Cccop (not verified)at 08:08 on October 14th, 2009
You ppl are nutbars
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Momof6 (not verified)at 18:00 on October 8th, 2009
I am sorry but you have just got to be kidding me with this child schizophrenic. My belief is that this is a child whose bad behavior has been indulged by parents who don't have a clue. I know this sounds judgemental and I guess it is - perhaps the "severity" of this child's illness was not fully enough explored/explained on the Oprah show - maybe that is why I am not believing this "diagnosis". Were any other personality disorders explored before it was decided this child was schizophrenic? I guess I would just need to have more information before I will buy this story. Granted these people need not prove anything to me nor to anyone else - it is their life and they can live it as they see fit. I do think it is unforgivable to bring another child (their son) into the mix though.
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Will Stenner (not verified)at 17:58 on October 27th, 2009
When someone says, I don't mean to be judgemental before speaking, that means you have judged the situation to your own basis and therefore are very judgmental.
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Erik Aronesty (not verified)at 11:02 on October 12th, 2009
Sleep disorder is common in children.Left untreated it can have long term developmental effects, including hallucinations. en.wikipedia.org/wiki/HypnagogiaGiver her a children's dose of Ambien every night and take her OFF the anti-psychotics. The reason why they aren't working is because she's misdiagnosed.
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sparkleiiiii (not verified)at 16:23 on November 27th, 2009
"Sleep disorder is common in children.Left untreated it can have long term developmental effects, including hallucinations. "Finally someone with some common sense on here.
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Kathie Sanchez (not verified)at 21:02 on October 27th, 2009
You all should not comment until you have been there. We have a 5 1/2 year old that has been hallucinating that we have documented since age 8 months. There are no cures, and very few protocols for doctors to diagnosed this, and no special help that we have found. The only help is when he gets very violent, which as of yet is manageable, and being told that he will get worse. You folks that doubt need to take a break from your hardheartedness and be better listeners. If a tree falls in the forest and you personally are not there does it make a sound? Yes but you'll never know because you were not there. Listen harder. And Ambien makes the hallucinations more intense and last longer.
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Acami (not verified)at 15:04 on November 2nd, 2009
This to me is just pure bologna. As a child a had vivid imaginary friends. They got angry, happy, sad just as I did. This girl looks drugged from the medication. I am a believer children will do what their parents allow them to do. That hitting spell is just a phase. My sister one day just suddenly started biting my mom. I withdrew from asking millins of questions to being very conservative. People can only characterize me as quiet. I am not a schizophrenic though. So to me these are over exaggerating parents. Not to say some kids dont have this to me this girl just does not.
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Kerry McDonald (not verified)at 19:31 on November 16th, 2009
I have never seen anything like this in a young child. I feel for her exhausted parents and brother and certainly for Jani. She is a very aware little girl who will never enjoy life as we do. Having read a few of the previous comments, I must say I'm a firm believer in not judging until you have 'been there'...wherever that may be.
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Greg N Went (not verified)at 19:35 on November 16th, 2009
Message for Michael & Susan schofield Hi I was diagnosed in 1981 with schizophrenia but believe that I had it mildly as a child as i had strange thing would happen, not to the extent that Jani has, it got much worst as i got older to the point that i ran away and lived in a hole in the ground for 2 years just to get away from people. Could you contact me if you wish to discuss what i have tort myself, i believe this will help jani and becca, do you see how they interact with each other, this is because the know what each other are going though, i know the doctors are trying their best to help but unless you have seen and lived with what they are seeing and hearing then you would no bought have a hard time believing it, I take no drugs and have not had an episode for 25 years. This is a message for Michael & Susan schofield if anyone else would like to know then email me crusherbuckets@virginbroudband.com.au Thanks Greg Went Australia
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JesusSaves (not verified)at 08:32 on December 7th, 2009
I feel for this family and for anyone going through things like this. But if you believe in the Power of Prayer, this could be cured (if in Gods will). I would hope that I'd be fasting day and night if this were my child....The parents are already on anti-depressants and already believe there is no cure, why wouldn't you consider the one true alternative. And anyone who thinks this is nutty, needs to examine themselves and understand your wisdom is of the world and not from God. With Man, nothing is possible, but with God, ALL Things are possible. You can't go back and forth trying to understand what this little girl has...or say it's one thing and not the other....but you can say that this little girl needs help.
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TP (not verified)at 14:24 on December 7th, 2009
Jesus Saves....I strongly believe in God and the power of prayer but those things alone do not cure all illnesses. Trials are put in our path to learn and grow from. Everyone should have an open mind and realize that this could be a real problem (even if you've never heard of it) and there are exceptions to all situations. Most illnesses are not textbook, it took me six months to have a thyroid problem diagnosed properly after seeing numerous specialists. We do not have a right to judge what this child and family are going through. We should offer our support and love. Period.
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Drazana (not verified)at 18:52 on December 7th, 2009
I cannot believe the insensitive ignorant comments posted about this child, her parents and her very real condition. I am 41 years old and have suffered from depression and anxiety disorder since I was eight. To suggest that this child is trying to get attention is ridiculous. Mental illness is very difficult to cope with and even more difficult to comprehend as a child. I did not understand what was wrong with me; I only knew that I was very afraid and felt very empty inside for long periods of time. I was ashamed about anyone outside of my immediate family finding out about this. We need to support children with mentall illnesses and not make assumptions about things we don't understand. Unless you have been in this situation you cannot possibly understand the pain and suffering this family is going through
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e. (not verified)at 00:48 on December 9th, 2009
i have a fairly serious and not very common mental illness and i can tell you from my own experience that mental illness does have a connection to spirituality. the body, mind, and spirit are more connected than we realize. i don't understand it- but i know it's true because i live it every day.the best solutions involve healing in all 3 areas. every person has a different situation, even with the same illness, and different things will make the most difference for them.we can only judge others from the experiences we have had and things we have learned from others' experiences. those of us with little personal experience and little education as to the real experiences of others can easily be ignorant and voice our opinions that are only based on our own lack of experience. discounting the experience of other people is one of the greatest signs of pride and lack of education.
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e. (not verified)at 00:52 on December 9th, 2009
when other people say they believe in spirits- why are you so quick to attack them? you don't know what personal things they have experienced. you may never have had an experience to lead you to believe in it- but you don't know what someone else has gone through.why can't we just be open to admitting we don't know everything and not try to insult people because they may have gone through something you have not. i believe in medicine. i also know there is a spiritual factor in mental illness. i don't understand how it works together- but i know that it does because i live it every day.
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jamiinvegas (not verified)at 15:52 on December 9th, 2009
I worked with Schizophrenic adults for many years and have a very good understanding of the disease. I tham not totally convinced she has Schizophrenia, though I've never seen her unmedicated. It sounds more like a personality/ behaviour disorder and a severe sleep disturbance causing the hallucinations. I read the parents blog and they claimed that Thorazine helped ( when she was coming out of the sleep induced by the Thorazine she acted like "herself") . I am curious to know about any sleep studies performed on her . In New York where I worked Thorazine was the drug of choice and I can assure you there was nothing normal about the patients on Thorazine as far as their thinking is concerned, they are just really sedated. Hope they don't give up on getting her a better more accurate diagnosis !
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julz (not verified)at 07:01 on December 15th, 2009
i think it is great that her parents have the strength and will to do whatever they can for her, deep inside she has to know how lucky she is to have such loving , caring parents. she is a beautiful little girl!