Jayden Clark, Age 6, The Boy Who Can Only Eat 9 Food Items

by Swan | February 24, 2012 at 04:06 pm
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Jayden Clarke is from Wootton on the Isle of Wight and has spent most of his life in hospital.  He suffers with many ailments, including analyphalactic asthma and rhinitis, both symptoms of a rare allergic condition - causing him to have allergies to most foods and beverages.

In fact, his entire diet consists of only 9 items.  If he eats anything else, Jayden is plagued with severe breathing problems, rhinitis, swollen stomach, constipation, bleeding bowel and dry skin - the latter being much more severe than the dry skin we treat with beauty creams and the like.  This condition actually cracks Jayden's skin and causes it to bleed.

Somehow, the lovely blond boy is surviving on: cereal, chicken, ham, pears, apples, bananas, carrots, potatoes and rice.

Years of testing which have included a series of biopsies, has determined the cause of the symptoms, with a final diagnosis of the rare condition; Eosinophillic Gastrointestinal Disease (EGID), which only affects 700 people in the UK.

As if only being able to eat 9 foods isn't bad enough, his doctors restricted him to a special baby milk, Neocate, for a period of 21 days last year.

Quote

Nicky said: It was a horrendous time. We caught him trying to lick crumbs off the table, he was so hungry. Explaining to him we were only trying to make him better was so difficult. There were lots of tears and he kept telling us we could not starve him because he was only a five-year-old boy.
Daily Mail Reporter
You can almost hear the heartbreak in her words.


As a baby, Jayden was very agitated and kept getting all kinds of illnesses made worse by the fact that (at the time), they had no idea the condition was caused by food allergies - and not just the normal ones, such as peanuts and eggs.  He was prevented from having normal baby milk and probably used a substitute such as soy milk.

I say 'probably', because my eldest son suffered from asthma as a 2 year old and I spent endless nights in the bathroom, with the shower running only on hot and the sink faucet turned up full.  I would sit with him on my lap,  rubbing his back to try and soothe him.  Gratefully, the steam would enter his lungs and he'd be able to breathe again.  He also slept with a humidifier in his bedroom.

His asthma was caused by 9 different foods, including an allergy to cow's milk.  Once we cut those foods out and substituted cow's milk for soy milk - no more asthma!  I even home made his icecream et al and had to buy all milk free products, including bread made with soy.  But it was all worth it to see him breathing easily again.

Jayden’s health is even worse, life-threatening in fact, and has put a huge strain on his parents, Rob, 49, and Nicky, 43.  So much so, that both gave up their careers in the police force and the NHS to care for him, as he spends only a little time at school.

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Although the diagnosis has given the family some direction, it has created other problems for Jayden. Nicky said Jayden was already fed up with his restricted diet and chips were one of the only things he was happy to eat. ‘There are some things he won’t eat because he is so fed with them, like chicken and rice. I deliberately keep certain foods out of the house to avoid tempting. [...] it’s very hard on him, especially when he has to sit and watch his friends have their lunch at school, when he can only eat certain things.’ Nicky said the family was very conscious about eating around Jayden and her 13-year-old son, Ross, has to eat sweets and chocolate in his bedroom, out of Jayden’s sight.
Daily Mail Reporter
Allergies range from inconvenient to very serious conditions, especially if they can be as life-threatening as EGID.  Just over the weekend, an 8 year old girl, Amaya Seraton, died due to an allergic reaction, though specifically which foods were involved was not disclosed.

Resources:

Apfed
American Partnership for Eosinophilic Disorders

Children's Hospital Colarado
Gastrointestinal Eosinophil Diseases Program

The Childrens Hospital of Philadelphia
Center for Pediatric Eosinophilic Disorder

References:

County Press Online
Isle of Wight
 
We're here for other sufferers
by Matt White

Radio FM - World News
The boy who can only eat NINE foods: Six-year-old has rare life-threatening allergy/
by admin

MedicineNet.com
Definition of Allergic Rhinitis

Daily Mail
The boy who can only eat NINE foods: Six-year-old has rare life-threatening allergy
By Daily Mail Reporter

Daily Mail Reporter

FrederickNewsPost.com
Local Brief
From Staff Reports

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