Health

Launch Of The User's Personality Disorder UK Survey - R.I.P. Kate

by Art de Rivers | May 27, 2009 at 06:16 am

329 views | 13 Recommendations | 5 comments

By Art De Rivers UK Mental Health Story

UK Personality Disorder Spectrum Survey Launched May 27th 2009

Kate Logan of Gateshead passed away in 2007 and her friends spanned the UK and parts of the world. Kate had Borderline Personality Disorder . That disorder, where attachments and insecurity become exaggerated features of inner life, and where the pain of that inner life is like tortured fires burning the soul of a red razor walker - and it can kill .

Kate took pills in 2007 and died . The full Coroners report is not yet out and her NHS Trust reportedly appear to have been very very slow in yielding all the information up for consideration .

Her friends and those close to her, felt she had little treatment of any worth .. In fact some believe inadequate treatment and the poor behaviour by the NHS contributed to her death

Her friends kept her memory alive Online glittering in a carmine memory-pink logo - which in its own way says "Farewell , we will remember you " and some have tried to form a way forwards to help others - partly in her memory . This has taken the shape of Online harbour of some friendship in forums .

Yet forums too are often an expression of the powerlessness in which there are echoes of an abandoning UK NHS system which creates little therapeutic growth and containment and leaves it to the world's winds . Perhaps now a survey spark has lit some extra hope.

Its this overall sad context that inspired the Online UK wide survey to capture key information about UKUser-Satisfaction with the NHS services.

Its time more Users owned the right to measure the services back . Its a first perhaps, and is a small step forwards on the UK feeling of social and services moons of Personality Disordered abandonment.

And many do complain they are abandoned to no help , no therapy , no emotional resolutions to things like child abuse and the pain of it - to being heard out more fully ..Theirs is a life of struggle to be heard from long ago....

The Survey embraces not only Personality Disorder but Borderline PD and PTSD and Complex PTSD as well as Dissociative Identity Disorder (DID) ..

All appear to be undernourished parts of the spectrum of human differentness - without much help - this NowPublic.com channel will keep you posted .

Further Links :

South East England UK PD BPD Consultations :

01.Consultation summary.pdf (Size: 3,201.3K)
02.Feedback form to print out.pdf (Size: 140.39K)
03.Frequently asked questions.pdf (Size: 273.03K)
04.Understanding reasons and costs.pdf (Size: 2,706.82K)
05.Possible effects on different groups.pdf (Size: 596.16K)
06. Possible key elements of future service.pdf (Size: 571.72K)
07.National Guidance about services (Size: 280.62K)
08.Understanding the need for PD services.pdf (Size: 380.93K)
09.Review of evidence.pdf (Size: 368.08K)
10.Timeframe for consultation.pdf (Size: 154.95K)
11.Ways we're involving people & organisations.pdf (Size: 610.02K)
12.Reviews of the planned consultation process.pdf (Size: 436.72K)
13.Consultation Advisory Group: purpose & feedback (Size: 530.48K)
14. Press releases and updates.pdf (Size: 433.23K)
15. Discussion groups.pdf (Size: 313.49K)
16.Decision making group: purpose and feedback.pdf (Size: 195.79K)

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recommend This comment thread is now closed

jazzyzazzy

at 01:57 on May 28th, 2009

people with this disorder are clearly very vulnerable and should be tracked by professionals as they do tend to try and skip their meds or in some instances forget to take it. Mental illness could rear its ugly head on anyone at anytime and should not be underastimated where care is concerned.Kate was a small fish in a great big pond of suicide cases due to mental health problems.

Art de Rivers

at 07:27 on May 28th, 2009

What you say about meds is only partly true and actually more so of people who are seriously psychotic - the deeper truth though is a profound need for humanly receiving therapies which open up the reasons for the PD Spectrum conditions . The PD Spectrum area is often created by high early trauma or seperation anxiety early on in kids . The reliability of attachment through which a stable sense of Self develops (via empathic reflection mediated by the parents) has often been under some real distress in sufferers of PD spectrum problems ..

Mourning for attachment-losses is not a well developed emotional route in people with PD Spectrum disorder issues in my opinion, and thus resolution is hard to come by because many seek attachment figures projectively (acting out) which means their unmet needs from childhood are kept alive unrealistically in the present .

They are quite literally reliving aspects of their past unmet needs inside presents which do not fit the context of a childhood which is powerfully driving yet subconscious .

Emelda (not verified)

at 00:27 on June 2nd, 2009

This survey seems to be very bias, i would not trust the results.

Marjorie Lloyd (not verified)

at 02:16 on July 11th, 2009

Any survey is biased towards what information you are trying to find out. That is how large organisations support their own needs. They never ask the questions that really need to be asked. It could be argued that only the people who use (or are excluded) from such services know which questions to ask

Sarah Mackay (not verified)

at 03:16 on July 11th, 2009

Unfortunately the quality of the survey is so poor as to leave many of the fields inadequately answered and any findings from this survey would be disregarded in a standard systematic review.

Which is a shame. A good starting point though.