Managed Heath Care and Sleep: Unmanaged, Not Care [UPDATED]

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[UPDATED Below on Oct 21]

If anyone's been really, actually, paying attention, Jace several times sought a medication named "Xyrem" and was denied it by the manufacturer and an organization named NORD. (please, type Xyrem or NORD into the search box up there in the top left corner)

He needed it because it is the only currently known substance that will provide relief for the CAUSES of insomnia, narcolepsy, and several other PHYSICAL and NEUROLOGICAL maladies of the brain's very structure.  Xyrem, also known as "Sodium Oxybate" and GHB (gamma hydroxybutyrate). It is ridiculously regulated by the FDA in the USA. In fact, it is easy to make and is illegal to do so in the USA ONLY. The excuse is that it has been abused too much. MY suggestion is that it eats into the profits of the pharmaceutical companies that have tons of Ambiens and Lunestas to sell to hospitals. The drugs that corporations hand out like candy to hospitals in "Behavioral Health" wards when sufferers get put "into the system." Why solve the problem at its source? The Lunestas and Ambiens would no longer be entrenched into the system and their sellers/manufacturers would not be able to continue profiting from proliferating these socially-worsened conditions (the meds themselves worsen the conditions and cause addiction and sometimes death when, in desperation, an insomniac overdoses).

No one EVER was caught influencing the FDA, right??

The REAL malady is not "lack of sleep" or "daytime sleepiness." It is "Poor Quality of Sleep." Poor sleep quality is caused by the brain's inability to accomplish the deep sleep stages of sleep known as delta-wave sleep, or stage three and four in the "typical" sleep progression - this is when the brain is the least active and ready for restoration and repair.

By the way: There's a good book called "The Psychiatry of Sleep" that will educate you (and your ignorant doctors) about the most current knowledge of sleep (2006? - way more up to date than your doctor who graduated... when?).

Important Note: There are many instances of disinformation about which stages of sleep provide the most rest for the human mind, specifically pharmaceutical corporations advertizing in magazines and television, trying to sell hypnotic agents like Lunesta, Ambien, and others, declaring that REM sleep is the most restorative. THIS IS AN OUTRIGHT UNTRUTH. As always, don't believe it because you saw it on TV. I've seen it. I wanted to put my head through the CRT.

The origin of delta-wave sleep loss comes from several related, comorbid or independent sources. I suffer several of them (why do you think I'm writing this at the time when most people sleep?). Jace suffered several: Autism, PTSD, nightmares, anxiety, medication mixture complications (being "put" on inappropriate meds), misdiagnoses and more extensive details I wont expound on; the information is out there: do the research. Or, just read VictoryGrey's article titled "Excessive Sleepiness."

Managed heath care is not health care. It isn't managed. They manage YOU as they see fit and as best befits their stock holders and "the bottom line." It has nothing to do with "heath" or "care" as the good doctors and the sufferers will tell you. It's corporate ignorance and greed. The people running the organizations are not doctors nor competent in pharmacological chemistry. They pay "doctors" and "nurse practitioners" to write documentation for their own benefits. The benefit is: doing everything they can to NOT provide a human being with the means to heal. In other words, LIFE SUSTAINING MEDICATION IS REFUSED and in place of the "right stuff for the right job," they will proffer up chemistry mixtures that will WORSEN your condition.

Medicaid, a GOVERNMENT department, is a known practitioner of this tactic. You must FIGHT with their paper pushers to provide them the exact legalese language they demand in order to "pre-certify" access to the "right stuff." This oversteps authority, legal practice and goes right above the heads of doctors trying to do right by their patients. Who's the professional in health care? The neurologist who specializes in sleep disorder pathology and neurology or some minimum wage keyboard monkey shuffling pages in their "excuses for not providing what is asked" binder?

Insurance providers will proffer STIMULANTS to "keep you going in the day time," treating the symptoms (badly, and worsening the underlying condition) instead of allowing access to the medications that will deal with the CAUSE.

Citation 1 HERE demonstrating the use of stimulants.

Citation 2 HERE demonstrating the truth. Note this definition:

"Stimulant:

A substance that makes a person feel more energetic or awake. A stimulant may increase organ activity in the body."

Adderal, Ritalin (amphetamines), Provigil and other common "medications" for "daytime sleepiness" ARE STIMULANTS.

As mentioned before, I suffer insomnia too. Imagine what VictoryGrey said about Jace's memory playback to Mike in the "Trash [EDITED]" posting... do you suffer that? If so, you should be outraged enough to fight for your life. Are you? Can you? Are you too disabled to fight for your rights? Who will?

NO ONE.

Certainly not NORD. See Jace's correspondence to them HERE.

Some people, isolated by a society that thinks "it's all in your head," without legal or government support, may make complaints now and then, but they fall on deaf and willfully ignorant ears. It accomplishes nothing for themselves or anyone else. There is no "movement" or "class action lawsuit" where both ought be. Where is SOCIETY?

Managed Heathcare is just more of the sociopathic antisociety that Amerikans embrace via ignorance, complicity and the attitude of "I can't do anything about it." There is certainly a small amount of outrage that gets patted on the head in the media, but as a "Nation," there is no community support to help those in need. Those roads are blocked by government red tape and corporate greed and dismissiveness.

This is true for the topic of medication, homelessness, sexism, ageism, harassment, racism, neuroracism and more. This is not a "Nation." These are not "United" states. This is a land mass filled with antipathy, ignorance, greed, infighting and complicity. Even the few organizations who claim to fight for human rights are shamefully selective about who they select as their "glory fight," demonstrating just how wonderful they are. (insert inappropriate hand gesture here). ACLU, anyone? NOT INTERESTED.

Nothing will ever change for the better and this vile antisociety will continue plunging its roots into the dystopian soil it already grotesquely flourishes in.

Do you care?

Seems like you don't because Jace was at it for about four years (including while working) and I am still pulling my hair out today, scraping at my flesh nightly in agony of insomnia and parasomnias.

There's been no action. No outrage. No motion. There HAS been disinformation sponsored by your tax dollars (medicaid) and your reality television shows (the pharmaceutical commercials).

When does outrage become action?  In this "Nation" of "me, myself and I," the answer is a depressingly likely "NEVER."

Congratulations.

Now I'm off to figure out what to do with my itching body, racing thoughts, aching muscles, irritability and the KNOWLEDGE in my head which will not help me get relief.

Sleep well. Or don't.

-Intransitivus

UPDATE: The company that makes Xyrem, owns the patent and works with the central pharmacy that distributes the medication AND the idiot organization called NORD is called Jazz Pharmaceuticals. Feel free to call and write your displeasure at how "heathcare" works in this antisociety.